Posts Tagged ‘NHS’

Freedom of speech?

ukip

A couple of days ago, blogger Michael Abberton  got a visit from the police. As reported in the Guardian:

“He was told he had not committed any crimes and no action was taken against him, but he was asked to delete some of his tweets, particularly a tongue-in-cheek one on 10 reasons to vote for Ukip, such as scrapping paid maternity leave and raising income tax for the poorest 88% of Britons.”

Michael described his experience in his own blog here. As he put it:

“…they said this was in relation to a complaint that had been made by a certain political party in relation to tweets I had published about them and one tweet in particular which talked about ten reasons to vote for them. The PC wanted to know if I had made that poster.”

from Paul Bernal’s blog

M.E. awareness month

The month of May is “ME Awareness Month”, with May 12th being the particular day, and I have also seen the week starting May 11th designated as ME awareness week.

ME is classified by the World Health Organisation as a neurologically-based disease. It is of unknown cause, although there are several theories including viral and environmental agents. There is no known cure.

Unfortunately, in the UK the NHS seems to have ignored the WHO’s classification of ME as a specifically neurological illness, and has lumped ME together with any and all unexplained tiredness and fatigue, which can in fact be caused by a number of things, including Lyme Disease, Lupus, vitamin B12 deficiency and Pernicious Anaemia, Thyroid and adrenal problems, Sjögren’s, PCOS and other endocrine diseases, MS, fibromyalgia, depression and more, and has called the whole collection CFS, MEcfs or cfsME.

Within the umbrella of CFS there is obviously a vast spectrum of symptoms which range in severity, from those who are experiencing a mild loss of ‘get up and go’ to those who are in constant pain and utterly bedbound and unable to care for themselves, and since it is an umbrella term, treatments that may be helpful for mild types of CFS, such as GET – graded exercise and CBT – cognitive behavioural therapy, are wholly inappropriate and can be harmful for those who actually have ME.

CBT can be useful for people not coping well with any long term chronic illness but should not be touted as a main treatment for ME in the way that it is, based on the faulty assumption that CFS is inevitably linked to caused by psychological factors, and GET is harmful to PWME who have the key symptom of Post exertional malaise.

This situation has been exacerbated by the psychiatric establishment which has greedily claimed all ‘CFS’ patients as their own, baselessly alleging that all CFS must be related to mental and emotional factors.

Thus the tendency is to treat all CFS patients as though they are all suffering from an unexplained, probably psychologically-based, rather than neurologically-based illness, regardless of the severity, and further to fail to investigate thoroughly or adequately in order to rule out any other cause (such as those listed above).

There is no definitive test for ME yet (largely because genuine research has been so scarce), and so ME should never be diagnosed until every other possible cause has been eliminated.

The classification of ME together with any unexplained CFS is a nonsense which means that people who actually have curable and treatable diseases aren’t getting the help they could and should be able to expect, while those with ME are simply treated with disdain instead of receiving the palliative care they need.

This is a wholly unacceptable situation for everybody involved, which helps no-one, except those few outspoken psychiatrists who like to gain notoriety by making the psychological case and denying the reality of the suffering.

A friend has also pointed out that MS, asthma, duodenal ulcers and other illnesses were all considered psychiatric problems before biomedical caught up.

Thanks to “life for beginners” for the reminder and the post.

Keep your health records private, here’s how …,

 Featured Image

Atos…yes, the French firm Atos have been awarded the very important contract to extract patient data!

A company who is responsible for the deaths of disabled people due to their disgraceful handling of ‘fit to work’ tests has been given even more responsibilities…I still can’t believe it, is it April 1st already?!

I won’t elaborate further than The Independent’s article, there’s no need…

http://www.independent.co.uk/news/atos-to-manage-nhs-caredata-project-despite-ongoing-mess-over-disability-benefit-assessments-9153885.html

If ever there was a good time to opt out of this disgraceful mess, it’s now!

Here’s the link to the opt out form, just fill it in for each member of your household and drop it in to the reception desk at your GP surgery. They will probably sell off our data anyway, but opting out is taking a stand and it’s always worth a try to protect our rights.

http://medconfidential.org/how-to-opt-out

NHS hospital data HAS been sold to insurance companies so they can raise their premiums for high risk patients. This is something that is apparently illegal and medical data should only be used for the purposes of research to better our lives. Hiking up insurance premiums certainly isn’t to better our lives!

http://www.telegraph.co.uk/health/healthnews/10656893/Hospital-records-of-all-NHS-patients-sold-to-insurers.html

From Echo Britain

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